Thursday, May 29, 2008

She's a Butterfly






We made it till 5:45 today! Progress!!!! Yesterday was a big day! I needed little time to process it with God before I posted. My mother in law and I ventured up to Chicago with Libi to take her to an international adoption specialist there. On the way up we stopped off at our great friends, Josh and Christy Schraeder's. The Schraeder's have been home just one month with their third child adopted from China. They are a precious family, and they have been a rich source of encouragement and advice along this journey. Libi enjoyed watching their children.

Libi did great in the car. She slept most of the way up and back. She got a little restless on the way home, but as soon as the music came on she was good.

So, the appointment. The good news is, Libi has great skin! The doctor said he has never seen better skin on a baby. The doctor also said that she is "beefy". Which I found funny, but Libi will soon grow to dislike that as an affectionate term. Bottom line diagnosis: Libi is complex. She has multiple challenges. This is not news to us, but when faced with the reality of it all at once can be a bit overwhelming.

We will start ruling out major concerns first. She will need a MRI and neurologist right away so that we can determine if there is any seizure activity happening that we are not "seeing". She could be having mild mini seizures. Also, it is very apparent that she has some significant reflux and has been aspirating. She will need to have some GI tests and a swallow test to determine the severity of this problem. Worst case scenario with this would be the need for a G-tube for feeding. Again, these things are the major concerns and most certainly we are expectant that these will quickly be ruled out.

Today Libi will see her pediatrician here and begin the battery of tests and referrals. Pray for her today as she begins the process of being poked and prodded. Pray that her mamma will have wisdom on comforting and advocating for her.

As I lay beside her last night I was so reminded by my Good King that He is capable of working beyond what we can ask or imagine. I have seen Him do it thus far, and I know that is the character of who He is. So we wait as He continues to do His thing...His new thing in Libi Faith!

This morning Libi and I were having such a precious time of "bonding". I was amazed at how she was hugging my arm and looking so intently in my eyes. I couldn't believe that this was the same little girl I laid with just 18 days ago!! She has truly transformed before my eyes! How she had changed...but not as much as I have changed. I feel like I don't even know myself. She has become my passion and love to extent I never imagined. I thought of the all the hopes and dreams I have for her and the Lord quickly reminded me that He has His own hopes and dreams for her. The greatest of those being, to give her a future and a hope...I believe for Libi that was us...and for us that was Libi!

So, I would ask that you would join us in praying for this little butterfly.

SHE'S A BUTTERFLY

She remembers when she first got her wings
And how she opened up that day she learned to sing
Then the colors came, erased the black and white
And her whole world changed when she realized

She's a butterfly, pretty as the crimson sky
Nothings ever gonna bring her down
And everywhere she goes
Everybody knows she's so glad to be alive
She's a butterfly
Like the purest light in a darkened world
So much hope inside such a lovely girl
You should see her fly, it's almost magical
It makes you wanna cry, she's so beautiful


God bless the butterfly,give her the strength to fly
Never let her wings touch the ground
God bless the butterfly,give her the strength to fly
Never let her wings touch the ground

4 comments:

Molly said...

Praying for you today and the days ahead. As you said, our God is a God of miracles and He has so faithfully proved that to us already!!

"The Lord will guide you always; he will satisfy your needs in a sun-scorched land and will strengthen your frame. You will be like a well-watered garden, like a spring whose waters never fail."
Isaiah 58:11

I hope that the Lord enables you to be that spring overflowing with love, Mrs. Arnold. That He gives you strength to carry on each day, even if things get overwhelming and tough with Libi's medical challenges.

In Christ's love,
Molly

Anonymous said...

Amy,
Thanks for posting the pics of the kids. I laughed at the one of Kai grabbing sweet Libi's face - shows everyone just wants to pinch those cheeks. And shows what a patient, kind, tolerant little sweetheart she is. Simply an angel. And in her eyes, there's clear determination, fortitude and a strength. The Lord will show us all through her life the power of His Spirit. We feel so honored to know her and your entire family.

We'll continue to pray and thank God in advance for a good diagnosis.

Thanks and love,

Christy S

BridgetdSmith said...

SHE'S A BUTTERFLY... I know those lyrics were intended for Libi Faith... As I read them & listened my sweet Dear Friend...They described YOU!!


God bless the butterfly,give her the strength to fly
Never let her wings touch the ground
God bless the butterfly,give her the strength to fly
Never let her wings touch the ground

...I SO appreciate these details & updates...I can better & more specifically know how to pray!

I love you AMY Arnold! I am encouraged & inspired by your willingness to be HIS Vessel, His light ....to so many!

Praying NOW!

Anonymous said...

Hi guys! I just wanted to let you all know that yesterday I made Libi a cuddley friend at build-a-bear! I had a blast making it for her! I can't wait for her to see it!

Libi's song