Friday, June 27, 2008
You've been Praying!!
Thank you to our Mighty Warriors who have been on their knees for Libi Faith. We can see it, feel it, and KNOW it without a doubt!! We started the new medication and we are amazed at what has happened. Our concerns of her being disengaged and lethargic are no longer. It actually has had an opposite effect on our little peanut. She is quite a WILD woman on this medicine. She is "busy" and loud.
We continue to see great progress in her. It is becoming addictive to see what new thing she will do with each day. Sorry to all of you who have to hear about every new little thing...I can't help my excitement.
Libi began to use the sign for "more" this week. We are hoping that this is just the beginning of her being able to communicate some things with us. She continues to grow more mobile when on the floor. Her largest struggle right now is sleep. We know this will continue to be something that is in transition for her. She was quite a dream for the first month, but we know that the medication she was on played a large role in that. It is quite apparent that her body does not really know how to settle itself down. Also, she has become quite aware that sleep means mommy or daddy are not with her. So, is she a bit spoiled? YES! And we feel that it is a very good thing for our precious Libi.
Once again, we are so thankful to all of you who are lifting up our daughter to the Throne of our Great God. He is working the miraculous in this sweetheart and we are so blessed to see it ALL!
Saturday, June 21, 2008
A Minor Glitch
So, unfortunately we took a trip via ambulance to the ER this morning with our precious Libi Faith. She had a seizure this morning at about 6:20. Bummer...but let me tell you what the Lord did!
Libi has been struggling to sleep very well since being off of her medication. We think that her body hasn't really had to "learn" how to sleep or stay asleep due to the medication making her so groggy. Last night Brad thought it would be best if we brought her into bed with us and helped start to retrain her in getting to sleep. She went to sleep like a champ! Because of this we were right there with her when she began to seize. What an answer to how the Lord gives you wisdom and discernment with your children.
It was not a very long seizure and not anything severe in form. She was quite upset in the ambulance on the way to the hospital. I have never heard her cry like that. I was able to share with the EMT how God brought this little miracle to us. He was amazed and touched as I shared how God had rescued her. It was in that moment that I felt God giving me perspective.
Sweet Joel woke up as the ambulance was departing and wanted to come to the hospital and be with his sister. It was so neat to sit in the ER watching Joel take on such a comforting role with his sister. It made me wonder what the Lord is equipping him for.
We once again covet prayers. The doctors have Libi on a newer medication that is not suppose to have as many side effects. She made so much progress this last week off of medication. We were AMAZED at how she was verbalizing and moving around the floor. It is our hope that she will continue to be alert and engaged.
Thank you once again for standing beside us with love support and prayers. As I sat in the ER I was reminded of these verses...fighting to keep my eyes on Jesus and knowing that we have access to the greatest power source imaginable!!!!
2 Corinthians 4
7But we have this treasure in jars of clay to show that this all-surpassing power is from God and not from us. 8We are hard pressed on every side, but not crushed; perplexed, but not in despair; 9persecuted, but not abandoned; struck down, but not destroyed. 10We always carry around in our body the death of Jesus, so that the life of Jesus may also be revealed in our body. 11For we who are alive are always being given over to death for Jesus' sake, so that his life may be revealed in our mortal body. 12So then, death is at work in us, but life is at work in you.
13It is written: "I believed; therefore I have spoken."With that same spirit of faith we also believe and therefore speak, 14because we know that the one who raised the Lord Jesus from the dead will also raise us with Jesus and present us with you in his presence. 15All this is for your benefit, so that the grace that is reaching more and more people may cause thanksgiving to overflow to the glory of God.
16Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. 17For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. 18So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal.
Tuesday, June 17, 2008
What's new???
Well, A lot happening here. Jack enters the world of double digits! We had fun ringing in this new decade with Jack. He is such a joy and delight. It was good to have some time to celebrate him. It seems like the days fly by and not much gets accomplished, but one thing is for sure little Libi continues to blossom before our eyes. We cannot describe the changes in her.
Libi went to the neurologist last Friday and he was very upbeat about her. He did not feel like there were any major concerns at this point. He decided it would be best to pull her off of her seizure medications and see how she does. Again, this was a doctor that has been hand picked by God. He was not my first choice for her. In fact, he was pretty much my last choice. Once again, God showed me the importance of trusting Him to lead. He was so kind and wonderful with Libi. We were told that he prefers to use medication. I thought we would have to beg and plead to take her off her meds, but I did not even have to ask! We were encouraged by the positive report, but even more so by the perfection of our God and how He perfectly orders all things!!
Since Libi has been off her medication she has really come to life. She has become much more animated and opinionated. We have even seen her pitch some fits. Can you believe I am going to shout out a hallelujah on that? She is so much more alert. She is playing on her tummy and scotching around more. She has gained a lot of strength in her back and abs. We are hearing "gaggy", for daddy more frequently. She really enjoys playing. Right now she is next to me in her booster chair playing with a puzzle. She like to BANG!
So, the big event...last night Libi ate cake with her OWN HANDS!!!! We met with her feeding therapist yesterday morning and she was very confident that within 3 weeks we would see Libi putting food in her mouth. She gave me some wonderful tips. Last night, we rejoiced as she enjoyed her "mush cake" that was made for her open house. (Yes, we are just now getting to it. I told you we have been busy! But, obviously God's perfect timing) We can't wait to watch this new skill continue to develop.
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